Arla is still not 100% back to her old self.  She has just had a bad week.  We are wondering if this really was the stomach flu or stomach upset due to a change in her overnight PEG tube feeding or perhaps there is some other underlying cause.  Today her right knee was painful, and she spent a lot of time in bed.   We are also coming to a potential crossroad with therapies.

It is so difficult to understand why Arla must endure suffering of any kind.  What could be the purpose in all of this?  It is also very difficult to zero-in on any changes in her health.  You or I could say…I feel this way… I am just tired… or I need to move my leg a little.  What might take an afternoon or a few hours to figure out with us could take days or a week to figure out with Arla.  Anytime she seems to feel badly the only recourse for determining the cause is observation or tests.  And in the mean time, each day she does not participate in therapy is three or four days of strength lost.

God is answering prayer….BUT… it still is a difficult journey.